Before Charlie, I thought that people on the autism spectrum did not enjoy being social. (Remember, my only real reference for autism was the movie Rain Man.) For Charlie, nothing could be further from fact. Charlie loves to converse with anyone and everyone.
If you've been around my Charlie, I am 100% positive that he has attempted to talk your ear off. Chances are that he has said some strange things, perhaps repeated the same thing several times, laughed in the wrong place (and a little too energetically,) gotten too close to you or been very loud. Sometimes he says those taboo things that we all know shouldn't be voiced. And I'm not talking about telling someone how old his mother is.
When he was three, he used to say the same speech to everyone that said hello to him in the grocery store. And that was a lot of people, because he was a terrifically cute toddler. The speech went something like this, "Hi my name is Charlie. My favorite color is red. This is my mom. That's my brother inside her belly. I am three." Sometimes he would go as far as to add in additional details, like our phone number at the end. It was a charming little speech that usually made the other person smile. They would always say something in return, because that's how conversations work. They're reciprocal. But, at the time, Charlie couldn't handle this scenario. He would usually answer their addition, whether it was "Oh, when will your brother be born," or "My favorite color is red, too," With the same thing. "Hi! My name is Charlie. My favorite color is red. This is my mom..." At that point, I'd get an interesting look. And I'd kind of smile, say something to try to be funny and move along.
The thing is, Charlie loves to be social but he has to really work at how to do so appropriately. We are always seeking out ways to help him be successful in his conversations. Charlie has learned the rules. You wait until someone is looking at you. Don't break into the conversation, wait for a pause. Take breaks in between your questions. Watch their facial expression and body language to know if they want to continue. He's learned to ask a question, wait for an answer or question in return, and then say something that makes sense in response to their addition. He has learned how to introduce himself. We spent an entire half year working on learning idioms. You know - those little sayings that we all understand, but to Charlie were perplexing puzzles... "There are butterflies in my stomach." "Cat got your tongue?" He has to learn the rules for everything, and his mind amazes me in its ability to retain and categorize these little details. Still, in real time it often goes awry.
Meal times have been especially difficult for him, (meal times are one of his biggest challenges in general.) This Easter, the bunny brought him a new game called "The Family Dinner Box of Questions". It's a Melissa and Doug product. The game includes a set of cards printed with conversation-starter questions. There are lots of ways you can play, but Charlie has enjoyed handing us each one card, face down at the beginning of our dinner. We take turns reading the question out loud, answering it and then we have a family discussion on the question and the answer as long as it feels comfortable. This game has started some fun conversation that Charlie has been able to easily join in on.
Tonight his card read, "If you could have a wild animal from anywhere in the world as a pet, which animal would you choose?" Charlie wanted to say a Wookie, but Andy vetoed his answer because that is not an animal of this world. (Andy also contested if a Wookie was truly a pet.) Overruled, Charlie then chose, "A cute little jaguar. But only while it was little, before it got too scary."
For those of you out there that have similar struggles to ours, or if you're just looking for a fun conversation-starting game for your family... I highly suggest this one.
Saturday, April 6, 2013
Macie at Ten Months
Macie's ten month milestone came on my mom's birthday - January 29th. January was a very long month for Macie and I... the longest since her first, spent in the NICU. We both survived a very long and confusing nursing strike, that ended Macie's breastfeeding career. She had a cold and the flu, got more teeth, started communicating and her personality continued to grow.
Stats:
Chronological Age - 10 Months
Adjusted Age - 8 Months
Weight - 17 pounds
There is no ten month doctor's appointment, but we did end up at the doctor a couple of times during the month. Macie did lose a few ounces this month, which was a first in her entire life. (She did not have any initial weight loss after birth.) I believe this minor loss was in part due to sickness and teething, and am sure that the nursing strike partially contributed as well.
Milestones:
- Launch forward from a sit (40 weeks)
- Started communicating through signs - "no" and "milk" were first (41 weeks)
- First ride in a shopping cart (41 weeks)
- First touch of falling snow (41 weeks)
- Starts to give a "high five" (41 weeks)
- First attempts at a crawl (41 weeks)
- Claps without sound (41 weeks)
- Begins nursing strike (42 weeks)
- First restaurant high chair experience (42 weeks)
- First finger food - puffs (42 weeks)
- Collects things into larger receptacles (43 weeks)
- Hams for the camera (44 weeks)
- First flu (44 weeks)
- Starts to point (44 weeks)
- Mimics words and phrases for sound, not meaning (44 weeks)
- End nursing strike by introducing bottles of formula (44 weeks)
At ten months Macie remained in 6-9 month closing and size 3 diapers.
Feeding:
For the first half of the month, Macie breastfed on demand. On January 11th she went from nursing about 5 times throughout the day to a sudden and complete refusal of nursing. She still would accept breastmilk, which I pumped and fed her by spoon, dropper and cup. After two weeks of this and with both of us having succumbed to a flu, I admitted defeat and started introducing bottles and supplementing with formula. I continued to pump and give her what I was able to produce, but once the flu hit my supply had a very sharp decline.
I have not written much about my struggles with breastfeeding but, to put it simply, it was a hard-fought honor to nurse both Ephram and Macie. I still mourn the early termination of her breastfeeding, but I am so grateful that we were able to nurse traditionally at all. I have major supply issues with my milk. On top of this, Macie was a preemie - and many preemies are unable to ever latch or maintain a latch well enough to pull the milk they need. I was blessed to be able to get Macie to latch when she was 3 months old, and for her gagging and spluttering to have declined enough to allow her to get the milk she needed. This happened at a critical point when my supply experienced an initial decline but before ever needing to supplement her with formula. On one hand we were only able to experience true nursing for six months. On the other hand, we were so lucky to be able to have this bonding experience and for her to have all the benefits brought by my milk for six full months. I will probably always be a little sad about this, but I also need to remember how lucky we were.
Solid foods introduced this month included:
- yogurt
- peaches
- squash
- applesauce
- Gerber puffs
- Cheerios
Macie started finger foods in week 42 with puffs and we introduced Cheerios 3 days later. She did pretty well with occasional spluttering... but right away she loved being able to feed herself.
Macie loved yogurt, but developed an intense diaper rash about five days after we introduced it. This was also in tandem with her nursing strike, so it took me some more time to put two and two together. (I thought that the nursing strike may be causing the rash due to concentrated urine.) When the rash spread first to her cheeks, then to her trunk and her arms, I realized that she probably had a problem with a food she was eating. I cut out the milk first, because both Ephram and I have problems with milk, and it took a full 10 days for the rash to back off. We have not given her milk since, and when we started formula we put her on the one that has broken down lactose proteins. She has not yet been allergy tested.
Macie continued to take Zantac to treat acid reflux, but the dose was reduced to .4ml once per day.
Sleeping:
Sleeping this month was not good. In the first half of the month Macie got two teeth and had a cold. During this time she woke overnight at least twice every night. Sometimes she woke more, up to five times a night. The night before she started her nursing strike she was up every hour, which was similar to the night of the nursing strike. She was often inconsolable and took a lot of rocking to put her back to sleep.
About a week into the nursing strike I adjusted, realizing that she was mad at me for trying to nurse her, and things started to improve. At the same time we both got the flu and she started teething again. But on most nights, except for her worst flu nights, she woke only two times.
At night she slept in the swing or in my arms. It was a long month for sleep, and I felt much like I had a newborn again. But I was usually able to keep a positive outlook realizing that she still slept better than Ephram had at the same age, and that the teething and sickness were going to fade away eventually.
Napping was equally confusing. Somedays she took two naps, somedays she took three or four. There was really no rhyme or reason. We were just surviving. When she looked like she needed to sleep, I held her and rocked her until she fell asleep. When I could, I napped with her. Ephram is an awesome kid and was very flexible through the whole thing... often curling up next to us to cuddle as well.
Teething:
Macie cut two more teeth in January, bringing her grand total up to six teeth: four on top and two on bottom.
Communicating:
Macie began to communicate with us by signs in January. The signs that she used by the end of the month were:
- No (shake of head)
- Milk (squeeze of hand)
- Again (head shake accompanied by a little dance)
- All done (shakes one hand)
During the month she also began to mimic a lot of our sounds. It was clear that she didn't understand what she was saying, but she was copying the sounds that we made. Her favorite was "dada", but she would do more complicated things as well. For instance, if I said "all done?" when she used the sign, she would say "ah duh."
Macie also communicated with us in other ways. She loved to laugh, and used not only her accidental laugh, but two intentional laughs that she developed. She also started to try to clap for us and waved at anyone that would look at her. (Her wave was often two hands instead of one.)
Favorites:
- Eating (puffs, pears, yogurt were her favorites during the month)
- Playing (Fisher Price picnic basket was her favorite)
- Waving at people
- Flipping through books faster than they could possibly be read
- Talking to Ephram
- Taking baths
- Singing the Itsy Bitsy Spider
- Playing in her jumperoo
- Putting things in bowls and boxes
- Babbling
Least Favorite Things:
- Getting teeth.
- Being sick.
- Nursing.
Here are some pictures from her tenth month!
Thursday, April 4, 2013
Potty Time?
This past summer Ephram was really interested in the potty.
But the timing was not right for me with a teeny tiny baby.
So we waited.
When I was ready in August, he was not.
Then, right before Christmas, he was again super excited about the potty.
But who wants to potty train over Christmas?
Especially with his birthday a week later?
No thanks.
So we waited.
Come the first of the year, the interest was gone.
Ever since, I've been trying to bring the interest back up.
(I don't believe in forcing the issue or pushing... I want a successful experience for both of us.)
We've got a reward chart going.
Different kinds of potties and potty seats.
Bribery - in the form of money, special time, special toys.
And even special marshmallows, that can only be eaten when one sits on the toilet.
Because Ephram gets so nervous about new things, I thought getting him to sit on it...
Even with his clothes on,
Might help.
And it did.
But not enough that he wanted to try getting on it without his pants on.
Finally in the beginning of February, we got him a Thomas train (Duke) that he has been wanting.
We told him that he could have the train the first time that he went into the toilet and flushed it.
Two days later he did it.
And excitedly took the train...
And has gleefully used his diapers since.
At least he has one successful, fully positive experience in his mind.
He may be 3, but clearly he is still happy in diapers.
I, however, am ready to be changing fewer.
So I will keep searching for the right motivation.
But the next time he indicates he is ready,
I don't care what else is happening and how it may not be the right time for the rest of us.
We will be taking his cue!
But the timing was not right for me with a teeny tiny baby.
So we waited.
When I was ready in August, he was not.
Then, right before Christmas, he was again super excited about the potty.
But who wants to potty train over Christmas?
Especially with his birthday a week later?
No thanks.
So we waited.
Come the first of the year, the interest was gone.
Ever since, I've been trying to bring the interest back up.
(I don't believe in forcing the issue or pushing... I want a successful experience for both of us.)
We've got a reward chart going.
Different kinds of potties and potty seats.
Bribery - in the form of money, special time, special toys.
And even special marshmallows, that can only be eaten when one sits on the toilet.
Because Ephram gets so nervous about new things, I thought getting him to sit on it...
Even with his clothes on,
Might help.
And it did.
But not enough that he wanted to try getting on it without his pants on.
Finally in the beginning of February, we got him a Thomas train (Duke) that he has been wanting.
We told him that he could have the train the first time that he went into the toilet and flushed it.
Two days later he did it.
And excitedly took the train...
And has gleefully used his diapers since.
At least he has one successful, fully positive experience in his mind.
He may be 3, but clearly he is still happy in diapers.
I, however, am ready to be changing fewer.
So I will keep searching for the right motivation.
But the next time he indicates he is ready,
I don't care what else is happening and how it may not be the right time for the rest of us.
We will be taking his cue!
Wednesday, April 3, 2013
Balls and Books
Balls and books -
By January, these were some of Macie's greatest loves.
My sister, Daja, sent these little Caterpillar Balls to Macie for Christmas.
They ended up being a source of great fun, and she played with them every day until she crawled.
(Ephram liked them too.)
She still plays with them now, but she is also able to go and get about anything else she wants.
She also loves, loves, loves books. At the beginning of the year, she started to get so excited about turning the pages of them that I had to memorize her favorites because she was so busy going backward and forward. First one on the list to memorize? Moo, Baa, La La La by Sandra Boynton. She adores this book ... I know it is largely because of the animal sounds, but I can tell that the illustrations are an equal attraction. When we first started reading this one daily, she developed a gutteral talking voice to mimic my "bow wow wow" sounds... And she talked in her gutteral growl for at least two weeks.
And yes, this post was just to talk about toys. I want to remember what she loved... so expect more of the same down the road. ;)
Tuesday, April 2, 2013
Ephram at 3: A Birthday Interview
1.
How old are you? 3
2.
What is your favorite color? blue
3.
What is your favorite toy? Lego
cars
4.
What is your favorite food? Bananas
(and macaroni and cheese, or pasta of any kind.)
5.
What is your favorite TV show?
Prep and Landing
6.
What is your favorite game? In
the Kitchen with Hap (LeapPad)
7.
What is your favorite animal? zebra
8.
What is your favorite song? Hop,
hop, hop
9.
What is your favorite book? If
You Give a Moose a Muffin
10.
What is your favorite thing to do
inside? Play the Piano
11.
What is your favorite thing to do outside?
Ride my bike
12.
What is your favorite movie? Bolt
13.
Who is your favorite superhero? Batman
14.
What do you like to sleep with at
night? Zebie (stuffed zebra)
15.
What makes you happy? With
Mama, Dada, May May and Charlie.
16.
What do you want to be when you grow
up? A Prep and Landing Elf
17.
Who is your teacher? n/a
18.
Who is your best friend? Mama
19.
What school do you go to? n/a
20.
What grade are you in? n/a
21.
What was the best thing that happened
this year? Snow (We had a weeklong snowstorm in
January that he apparently loved.)
Trips I took this year:
This year we went to
California in October. As part of the
trip we spent four days at a Disneyland hotel – three of the days in the
park. Ephram really loved his time with
all of the Disney characters. Mickey,
Goofy and Donald were his favorites. He
also had a great time in the House of Innovention and liked shooting the Zurg
on the Buzz AstroBlasters ride. The
carousel continued to be a favorite and he was fascinated by Small World when I
told him that was what the inside of a clock looked like. Ephram loved the chance that he had to meet some
new cousins (the Bowers) and get to know some better… especially Dustin Harris.
Teeth I got and/or
lost: I don’t
believe there was any change in his teeth this year.
Some of my quirks: I have a significant speech delay which is
characterized by my voicing the beginning sounds only of words that I
speak. I have a LOT of words – an appropriate
amount for my age – I just can’t form them completely. I lack most vowel sounds and just started
putting on a select few ending sounds right before my birthday. Because of my communication difficulties, I
have learned how to get my point across with some of my own signs. Mama’s favorite one is when I stretch up
really tall to indicate I want something big, or to say that something is
big. I like to do everything myself,
especially cook. This can be a problem
because I have a hard time with flexibility when things don’t go my way. When Mama was in the hospital, this tendency
grew more than before. I have a kind of
performance anxiety. I like seeing
something be done and deciding when to join in rather than attempting something
new right away. I do NOT like being the
center of attention.
Major accomplishments: I am the best brother ever. I try to help Charlie and make him happy, and
I love my new sister, who I call May May.
I help take care of her and make sure she always has something fun to
do. I made great progress with my words
in the last half of the year, started to ride a Stryder bike, and can throw a
ball with some pretty awesome accuracy.
When I feel like it I have shown good control of a crayon and can copy
letters. I have also started to learn
some songs. I especially like to sing
Twinkle, Twinkle Little Star and the Wipe Your Paws song on Disney Junior.
Sleeping habits:
This year I got much better at sleeping.
I no longer take a nap on most days.
Every now and then if I wake up before I’m ready or if we have an
especially busy day I will take a 1-2 hour nap in the afternoon. At night my Daddy puts me to bed. I am still not good at putting myself to
sleep, so Daddy lays down with me until I am asleep. Sometimes that only takes 20-30 minutes, but
sometimes it takes 1-2 hours. I go to bed
at 8:30pm and I usually wake up around 9am.
I still wake in the middle of the night occasionally. Sometimes I can put myself back to sleep,
sometimes I need my Mommy or Daddy to help me feel better, like when I have a
nightmare. Every now and then I get out
of bed at 4 or 5 in the morning and have an adventure downstairs. This usually ends in me doing something that
I don’t know how to fix, so I cry hysterically until Mommy and Daddy rescue
me. The best adventure was when I
flooded the kitchen with water from the sink this November.
Nicknames: Mommy
calls me Remy. I am also called Ephram
Bephram, Remy Roo, Remy Rooser, Remy Bedemy, Boo and Rem Rem.
Little Miss Moody
Macie had a couple of hard weeks in January, largely due to her nursing strike... which was itself brought on in part by teething and the flu. (Macie's flu was much lighter than the rest of ours, thank goodness.) I still need to record the story of her strike... before I forget it. Maybe soon I will.
Anyway, we saw a lot of something that we rarely see in January.
It was pretty difficult for the two of us. We no longer had nursing to comfort her and help soothe her tears. (I missed the comfort it brought me, too.)
We needed to learn a new way to cope. But we didn't happen upon one quickly at all.
In fact, Macie was pretty done with her mommy for a little bit. I will never know if there was a single trigger to cause her protest against breastfeeding or if it was the multiple factors I've identified, but regardless, she did hold it against me.
It probably didn't help that I was taking pictures of her while she cried so pathetically instead of helping her. But, in my defense, my attempts to help her were major fails.
Thank goodness for...
Her best friend. He could cheer her up any time. And soon we had...
Happy baby again.
And this cycle continued for about two very long and emotional weeks.
Ephram at Play
Ephram is so much fun to watch. The older he gets, the more silly and creative he is. Here are some random pictures of Ephram playing at home during January.
Here he is in his "tunnel". He has become obsessed with these little passageways he made between the ottoman and the couches. This particular ottoman is placed at the corner between the couch and the oversized chair, where an end table typically would be. (Our end table went away one night about a year ago because Ephram was determined to maim himself on it!) These tunnels are so much fun for him.
He found this little basketball hoop and basketball one day and was running around like crazy for a couple of weeks.
He got these robot gloves for Christmas. He puts them on backwards, so the robot face is on the inside of his hand, and then talks to them like they are robots. He also now puts these gloves on to drink ice water, because otherwise it is too cold. And he has the robots do tasks for him, like picking up. It's pretty cute.
He's become so animated, it cracks me up. I have no idea what I'd just said or done here, but he looks so very excited.
We gave him a calculator for his birthday because he loved mine so much. Now he plays with his calculator, and both of mine. (I had one upstairs and one downstairs, but now they are both downstairs.) I guess three calculators are much better than one!
Here he is in his "tunnel". He has become obsessed with these little passageways he made between the ottoman and the couches. This particular ottoman is placed at the corner between the couch and the oversized chair, where an end table typically would be. (Our end table went away one night about a year ago because Ephram was determined to maim himself on it!) These tunnels are so much fun for him.
He found this little basketball hoop and basketball one day and was running around like crazy for a couple of weeks.
He got these robot gloves for Christmas. He puts them on backwards, so the robot face is on the inside of his hand, and then talks to them like they are robots. He also now puts these gloves on to drink ice water, because otherwise it is too cold. And he has the robots do tasks for him, like picking up. It's pretty cute.
He also has been busy helping me "vacuum". Every time I start to vacuum a room, he comes running in to help with his own.
He's become so animated, it cracks me up. I have no idea what I'd just said or done here, but he looks so very excited.
We gave him a calculator for his birthday because he loved mine so much. Now he plays with his calculator, and both of mine. (I had one upstairs and one downstairs, but now they are both downstairs.) I guess three calculators are much better than one!
Subscribe to:
Posts (Atom)













































